When struggling leads to abiding abide down syndrome struggles the worthy walk

Almost a decade ago, I sat at dinner with a friend and wept. Postpartum depression wouldn’t relent, my husband’s business was keeping him busy far beyond the “normal” 40-hour work week, and my infant son had just been diagnosed with Down syndrome. I was struggling but...

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Sometimes I forget – Now on The Mighty! down syndrome down syndrome awareness special needs parenting the mighty

Sometimes I forget.

Don’t get me wrong, I don’t actually forget my son has Down syndrome. It is with us every day when we slog through reading basic books, every time I struggle to understand what he is trying to say, and every time I wonder if he doesn’t understand...

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God is never lost down syndrome joey loving jesus the glorious table

My youngest child is what we call an escape artist. Joey is eight and has Down syndrome. He also has limited impulse control and virtually no fear of strangers, wandering away from his parents (or teachers or other caretakers). Add to that a limited vocabulary and difficulty answering...

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When God doesn’t deliver you from your trials… down syndrome loving jesus obeying god the worthy walk

“I just want to be shallow and happy!” I cried. I was sitting at dinner with friends, a much-needed break in a hard season. I was still struggling with my son’s Down syndrome diagnosis, still stumbling through depression. Overwhelmed by the seemingly insurmountable...

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Created to be: Posting at The Worthy Walk disability down syndrome joey loving jesus the worthy walk trusting god's plan

Although I originally posted this article here about two years ago, it came to mind as I was listening to the most recent podcast on The Worthy Walk. The story of Joseph (the guy in Genesis, not the earthly father of Jesus) is one of my very favorites. I couldn’t help but share...

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Consider this… down syndrome joey loving jesus the worthy walk trials

“Now then, consider from this day onward…” Haggai 2:15

“Consider from this day onward…” Haggai 2:18

Seven years ago, my world was turned upside down when my three-month-old son was diagnosed with Down syndrome. Hearing that my child would struggle to grow and...

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Supposed to be: Intention matters down syndrome hope joseph perspective purpose special needs parenting supposed to be

This isn’t how it’s supposed to be. We’ve all uttered those words at some point, but for a while they basically became my mantra. This morning I read through some old posts and journal entries from the days (ahem, months) following Joey’s Down syndrome diagnosis,...

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“What’s wrong with that boy?” Now on The Today Show blog! disabilities disability awareness down syndrome special needs parenting today show

Friends, if you have been around for a while, you may have already seen this article, but I have BIG NEWS! I got an e-mail yesterday that this post is now being featured on The Today Show’s parenting blog!!! So may I humbly ask you for a favor? Please click on the link below, which will...

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When my daughter asked about her brother’s Down syndrome diagnosis – Posting at The Mighty down syndrome sibling love special needs parenting the mighty

“Mommy, can I ask you a question?” I could tell this was not going to be a simple yes or no question. I was packing her lunch, feeding her breakfast, and giving the baby a bottle. It wasn’t a great time for a heart-to-heart but I saw the thoughtful look in her eye and knew I...

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